Who says cerebral palsy and dancing don’t mix!
Students at the Children’s Learning Center (CLC) are moving all day long. CLC is a school at the Cerebral Palsy Association of Nassau County. Students at CLC get to practice important life skills throughout their school day using the MOVE Program and Rifton Equipment.
Students can practice sitting, standing, walking and even dancing. At CLC we service children with a variety of physical challenges. The staff and the students have an appreciation for Rifton Equipment and the MOVE Program. There’s a distinct excitement in seeing how the right piece of equipment and the right program can change a child’s life. A piece of equipment can help someone become a runner, walk down the aisle to receive their diploma, dance at the Prom, or, in the case of one of our students, be an independent ballerina.
Jessica is a happy, sweet, and caring young lady. She spends most of her day in a wheelchair. However, once she was put into a Rifton Pacer gait trainer, her smile was bigger than we had ever seen, as her world opened up and her legs led the way. Jessica practices her walking and standing every day at school with her teacher, educational assistants and therapists. As part of the MOVE program, Jessica starts her day coming off the bus and walks to her classroom using a Rifton Pacer. Having Jessica be upright in a Pacer was a way for her to be more independent and offered her an opportunity to interact with her peers at eye level in standing. Now Jessica can walk to the library, participate in classroom jobs and even run alongside of her peers to compete on a race track.
But that wasn’t all! Many little girls grow up wanting to become a ballerina, yet as a child with cerebral palsy, this dream is more challenging. The Pacer made it possible for Jessica to be upright as a ballerina and perform on stage. It assisted in highlighting all of Jessica’s talent as she is now able to twirl on stage and give a ballet performance that none of us will forget! Nothing is more heartwarming than her smile as she performs while the audience cheers her on.
Thanks to the MOVE Program at CLC, Jessica has had many opportunities to practice walking and dancing in a Pacer. This past December, Jessica and her father were invited to attend the annual Sugar Plum Ball. This ball is a special dance for fathers and their daughters. If not for the Pacer, Jessica would not have been able to stand upright to dance independently with her father. When given the Rifton Pacer, Jessica will even dance all day long with her friends and peers when she attends the annual CLC Prom. Jessica never wants to come out, she just wants to keep dancing. Jessica loves to “MOVE”. Each time Jessica is in the Pacer there is a smile on her face.
Jessica loves to “MOVE”. Each time Jessica is in the Pacer there is a smile on her face. Jessica’s family and support team at school have expressed that the MOVE Program and the use of the Rifton Pacer have increased Jessica’s independence not only in school but in her community as well.
Submitted by, Jeoan Pierre, Special Education Teacher and Marcie Casimir, PTA & MOVE Coordinator at the Children’s Learning Center
Madison loves her new job at school.
Growing up with the
This is Izyah. He has been using the MOVE Program for many years. At the age of ten, one of his favorite things to do was help wash the car. Involving children in everyday tasks is so important for their sense of purpose and enjoyment. At the age of sixteen, he enjoys playing “football”, which is actually the Rugby League in Australia. Using the Rifton Pacer gives him the independence in mobility that he needs to participate in this activity. Using the MOVE philosophy, Izyah has grown up experiencing age appropriate activities, with modifications just like his peers. Can’t wait to see what he is doing at 21!!
Submitted by: Tracey Banks, MIT
KCSOS - Blair School, Bakersfield, CA
The students at Blair School, a MOVE Model Site, participated in the Annual Coach’s Choice Track Meet held at McKinley Elementary on April 5, 2019. This track meet is held for all students in the KCSOS system. Congrats to our MOVE students for participating along with their typical peers.
Combined move international trainer and recertification hosted by Chesapeake care resources in north east, maryland
Part of every MOVE International Trainer course is some hands on activities. The first picture is of participants learning how to adjust a retainer prompt using a typical classroom chair. An important part of the training is to have participants practice doing the transition that is used for upright brief changes with no equipment. At this training, we added eight new MOVE International Trainers. They joined 24 MOVE International Trainers who were recertifying their status.
MOVE International Trainer Class of 2019 from Bakersfield, CA.
New Adventure for students in Peoria Public Schools, IL
Peoria Public Schools show off mobility skills their students have achieved through the M.O.V.E program. 4 classrooms from Rolling Acres Middle School in Peoria, IL (3 severe/profound classrooms and 1 autism classroom) treated their students to a field trip at the roller skating rink! This very successful day wouldn’t have been possible without the entire team which consisted of teachers, teacher’s aides, physical therapists, occupational therapists and speech therapists. This Peoria Public School MOVE team is already planning for more challenging yet fun field trips.
Submitted by: Jaime Vaughn
LUCAS REGAINS HIS ABILITY TO WALK
Typical Community Outings at Chesapeake Care Resources
in North East, MD
High Point School, part of Washtenaw ISD in Ann Arbor, MI became the 31st MOVE Model Site in Nov., 2018
Oak Park Elementary School
MOVE Training in Charlotte, NC
Watch this exciting video of the MOVE Program at the Meadowood Program, Red Clay Consolidated School District
Johnny’s Success with Toileting
Olivia started at the RISE Learning Center in 2016-2017 school year. She came to school after having hip dysplasia and corrective surgery. Olivia wasn’t able to fully extend her legs and preferred the fetal position for comfort. Olivia often expressed her discomfort in other positions by crying. Olivia started using the Rifton Support Station and Rifton Pacer to allow her legs the opportunity to extend. Olivia has been tolerating her adapted mobility equipment without crying and smiles when given the opportunity to be at eye level with her peers.
Olivia likes music and hanging with her peers. As the extension of her hips and knees has increased, Olivia is now able to tolerate standing in a Rifton Dynamic Stander for up to an hour! Olivia is starting to push through her legs to come to standing position during transitions as well! Olivia now participates in our school’s spirit club and encourages our basketball team during their games.
Olivia now utilizes her adapted mobility equipment both at school and at home. Olivia and her parents have a renewed hope thanks to the help of the M.O.V.E. program!
Submitted by: Allison Compton
RISE School wants you to meet Rebeca
Rebeca is a young lady who has been involved in the M.O.V.E. program for a few years. Over the past 2 years, Rebeca has blossomed in her interactions with her environment and others. When Rebeca first came to school, she crawled as her main form of transportation throughout her environment. She is now sitting independently in a classroom chair and walking throughout her school environment with support at her forearms in her Pacer or with one hand held.
Since Rebeca has been up and moving, she is starting to engage with things around her. She is starting to taste new foods, communicate with her peers, and tolerating daily living activities. Rebeca did not want to engage with others when starting school and now she is seeking out interactions with not only staff but her peers. Rebeca did not like to be touched when starting school and now she smiles and laughs and is starting to seek out touch from others. Rebeca is also enjoying her time in the therapy pool. This used to be one of her least favorite activities but now her smiles say otherwise.
Rebeca has learned to “move” where she wants to go in her environment instead of waiting for an adult when in her Pacer. Rebeca is making choices of things she wants and making eye contact with objects and people in which she is engaging. Rebeca hasn’t had the opportunity to experience much of her community since crawling was her only way to get around. Now with walking with one hand held or using her Pacer, Rebeca is enjoying community trips and riding the bus in a regular bus seat. With the opportunity to “move”, Rebeca’s personality now shines bright.
The E-Pacer at CERTS
In August 2017, C.E.R.T.S. Adult Day Program hosted Rifton at our Model Site in Newark, Delaware for the demonstration of their New E-Pacer.
Since that time, Home MediService Inc. was very generous in lending us an E-Pacer for several weeks to use. We had the opportunity to trial several of our participants at both our Newark and Smyrna sites.
We used the E-Pacer with Cory at our Smyrna site, the integrated lift and XL size was ideal to give Cory an opportunity to get up into a Pacer/gait trainer. Cory’s size would have made a manual gait trainer much more difficult. His Mother stated when she saw him up in the pacer that he “looked awesome in it!”
Demi from the C.E.R.T.S. Newark site trialed the E-Pacer, she appears standing more upright and in a better position for taking steps. Our staff commented on the ease and safety of getting Demi in and out of the E-Pacer.
M.o.v.e. is for everyone - including adults
Although the MOVE Program was started for children, it has proved highly successful with any age individual with multiple disabilities. MOVE for Adults started with a pilot study at Chesapeake Care Inc. in Maryland back in 2004. MOVE is all one program from toddlers to geriatrics. There are adult day programs across the US that have incorporated the MOVE Program.
Whale Watching Adventure
Deanna Bandy is a very social and fun loving lady. She is a talented artist and enjoys drawing. This picture is from a whale watching trip. There was a pod of whales swimming along side the boat. Deanna loves animals and also likes listening to music. Quite often you will find her singing along to the radio.
When Deanna began attending Smith Center Adult Day Program she joined the MOVE program. In the beginning, she was a bit scared and resistant about using the Rifton Equipment. The staff, along with the physical therapist, worked with Deanna daily to form a trusting relationship. Deanna remained a bit apprehensive but eventually she was willing to try to use the equipment, once she understood all the benefits that came along with being involved in the MOVE Program. In preparation for this staff started with just asking Deanna to help in her personal care needs.
The physical therapist started working with Deanna on sitting upright on the edge of a mat table. Staff began to incorporate this into her daily routine. As Deanna's ability to sit upright increased staff provided less and less support. Deanna is now able to sit upright unsupported for short periods of time and she is also able to sit in a Rifton Activity Chair with minimal prompts. Deanna has created many of her beautiful drawings while sitting in the Rifton Activity Chair with the tray attached. She also enjoys working on activities and having her lunch while sitting in the Activity Chair.
Soon Deanna was using the Rifton TRAM to help elongate and stretch her body and hips. This was performed by assisting Deanna into the Rifton Tram with the saddle prompt as a sling, under the guidance of the physical therapist initially. Deanna's face lit up as soon as she was raised to an upright position. She was so happy to be at eye level with the staff and some of her peers. This was a brand new experience for Deanna. Soon she was able to spend longer periods of time in the TRAM as her body adjusted to it. She loves strolling throughout the building and visiting with her peers and staff while she's in the TRAM.
Spending time in the TRAM has become something that Deanna truly looks forwards to every day. Deanna has greatly benefited on many levels from being involved in our MOVE program.
Submitted by: Tammi Czarnecki
Center for Disabilities - The Smith Center